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Pediatric Informatics: Computer Applications in Child Health (Health ...

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24 Information Management by Patients and Parents <strong>in</strong> <strong>Health</strong> and Disease 327<br />

the observation unit EMR and from the onl<strong>in</strong>e consultation with the endocr<strong>in</strong>ologist<br />

were recorded <strong>in</strong> Sally’s “smart” card and her onl<strong>in</strong>e PHR. Dr. S., notified by<br />

the Medical Home Web service alert of Sally’s emergency visit, was able to touch<br />

base with Dr. R. and Sally’s parents via teleconference between the office and the<br />

observation unit prior to discharge.<br />

24.5 Conclusion<br />

A comb<strong>in</strong>ation of advances <strong>in</strong> <strong>in</strong>formation technology, a matur<strong>in</strong>g of electronic<br />

medical records and an evolv<strong>in</strong>g bus<strong>in</strong>ess model for patient access to health <strong>in</strong>formation<br />

is mak<strong>in</strong>g scenarios such as described <strong>in</strong> the case study closer to reality<br />

than ever before.<br />

Author Disclosure Statement Mark M. Simonian is a past Board Member of Medem represent<strong>in</strong>g<br />

the professional societies and served on the <strong>Pediatric</strong> Advisory Group from the American<br />

Academy of <strong>Pediatric</strong>s to Medem – 1999–2006.<br />

References<br />

1. Hertz A. Section draft<strong>in</strong>g policy on reimbursement for phone care. AAP News.<br />

2005;26(6):34.<br />

2. Melzer SM, Poole SR. Reimbursement for telephone care. <strong>Pediatric</strong>s. 2002;109(2):290–293.<br />

3. Kirkland JL, Copeland KC. Telephone charges and payments <strong>in</strong> a diabetes cl<strong>in</strong>ic. <strong>Pediatric</strong>s.<br />

1998;101(4):E2.<br />

4. American Academy of <strong>Pediatric</strong>s Section on Telehealth Care. Payment for Telehealth Care.<br />

American Academy of <strong>Pediatric</strong>s Website; 2006. Available at: http://www.aap.org/sections/<br />

telecare/reimbursement.htm. Accessed December 4, 2008.<br />

5. Liebhaber A, Grossman JM. Physicians Slow to Adopt Patient E-mail Data Bullet<strong>in</strong> No. 32.<br />

Center to Study <strong>Health</strong> System Change; 2006. Available at: http://www.hschange.com/<br />

CONTENT/875/. Accessed December 4, 2008.<br />

6. Katz SJ, Moyer CA. The emerg<strong>in</strong>g role of onl<strong>in</strong>e communication between patients and their<br />

providers. J Gen Intern Med. 2004;19(9):978–983.<br />

7. American Academy of <strong>Pediatric</strong>s, Division of <strong>Health</strong> Policy Research. Periodic Survey<br />

of Fellows 51: Use of <strong>Computer</strong>s and Other Technology, Executive Summary. American<br />

Academy of <strong>Pediatric</strong>s; 2003. Available at: http://www.aap.org/research/periodicsurvey/<br />

ps51exs.htm. Accessed December 4, 2008.<br />

8. Bauchner H, Adams W, Burst<strong>in</strong> H. ‘You’ve got mail’: issues <strong>in</strong> communicat<strong>in</strong>g with patients<br />

and their families by e-mail. <strong>Pediatric</strong>s. 2002;109:954–956.<br />

9. We<strong>in</strong>gart SN, R<strong>in</strong>d D, Tofias Z, Sands DZ. Who uses the patient <strong>in</strong>ternet portal? The<br />

PatientSite experience. J Am Med Inform Assoc. 2006;13(1):91–95.<br />

10. Kane B, Sands DZ. Guidel<strong>in</strong>es for the cl<strong>in</strong>ical use of electronic mail with patients. The AMIA<br />

Internet Work<strong>in</strong>g Group, Task Force on Guidel<strong>in</strong>es for the Use of Cl<strong>in</strong>ic-Patient Electronic<br />

Mail. J Am Med Inform Assoc. 1998;5(1):104–111.<br />

11. Gerstle RS, American Academy of <strong>Pediatric</strong>s Task Force on Medical <strong>Informatics</strong>. E-mail<br />

communication between pediatricians and their patients. <strong>Pediatric</strong>s. 2004;114(1):317–321.

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