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Pediatric Informatics: Computer Applications in Child Health (Health ...

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404 J.H. Schneider<br />

31.6.1 Data Relevance<br />

An EMR typically conta<strong>in</strong>s much more <strong>in</strong>formation than what is needed for subsequent<br />

care. An example is the tim<strong>in</strong>g of <strong>in</strong>dividual <strong>in</strong>patient medication doses<br />

that usually would not be useful <strong>in</strong> an outpatient follow up visit. As EMR and<br />

e-prescrib<strong>in</strong>g adoption <strong>in</strong>creases, the amount of <strong>in</strong>formation available to HIEs will<br />

be overwhelm<strong>in</strong>g. 22 Critical <strong>in</strong>formation, such as medications on which a patient is<br />

discharged from the hospital, is useful if summarized. One of many value-added<br />

functions that HIEs can provide is aggregation and transmission of “medication<br />

reconciliation” data (“a complete list of a patient’s current medications, <strong>in</strong>clud<strong>in</strong>g<br />

herbal supplements and vitam<strong>in</strong>s, reconciled with new medication orders to ensure<br />

that no duplications, adverse <strong>in</strong>teractions, <strong>in</strong>correct dosages or omissions occur”). 23<br />

Both hospitals and providers have struggled with provid<strong>in</strong>g complete list<strong>in</strong>g of all<br />

the medications that patients are on across all their locations of care.<br />

HIE developers must decide which EMR/PHR data is important for aggregation.<br />

Important elements might <strong>in</strong>clude advance directives, problem lists, procedure<br />

histories, allergies, medications, immunizations, medical supplies, durable medical<br />

equipment and laboratory/radiology test results. Other <strong>in</strong>formation, such as family<br />

and social history, may be important but have less value to the function of the specific<br />

HIE. A number of HIEs, e.g., Northern Ill<strong>in</strong>ois Physicians for Connectivity,<br />

are us<strong>in</strong>g the ASTM Cont<strong>in</strong>uity of Care Record Standard (CCR). The CCR was<br />

developed by cl<strong>in</strong>icians and it conta<strong>in</strong>s a core set of health <strong>in</strong>formation designed<br />

to be transmitted from one care location to another. HL-7 has worked with ASTM<br />

to create the Cont<strong>in</strong>uity of Care Document, a document compatible with both the<br />

CCR and the Cl<strong>in</strong>ical Document Architecture of HL-7.<br />

31.6.2 Connection and Access<br />

Once HIE developers have decided what <strong>in</strong>formation to collect, the next question is<br />

how to obta<strong>in</strong> it. Some HIEs have data repositories and others do not. Each model<br />

has limitations when handl<strong>in</strong>g EMRs and PHRs. The assumption of an HIE without<br />

a repository is that the HIE-EMR/PHR connection is always available. If any EMR/<br />

PHR connection is <strong>in</strong>terrupted, the HIE will have <strong>in</strong>complete <strong>in</strong>formation. This is<br />

of particular concern <strong>in</strong> disasters, such as Hurricane Katr<strong>in</strong>a, where PHRs are more<br />

vulnerable to <strong>in</strong>terruption than physician or hospital-based EMRs.<br />

Alternatively, an HIE us<strong>in</strong>g a central repository of data has only the most<br />

recently accessed data from EMR/PHRs. It may not necessarily be the most recent<br />

data. Connectivity and availability are still issues, because if the EMR/PHR data<br />

is updated locally without connection to the HIE, then the HIE records are <strong>in</strong>complete.<br />

If a HIE performs analytic process<strong>in</strong>g of data, then it also needs to store and<br />

track the database versions on which specific reports have been based, for audit<strong>in</strong>g,<br />

corrections, and medico-legal purposes.

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