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Pediatric Informatics: Computer Applications in Child Health (Health ...

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5 Special <strong>Health</strong> Information Needs of Adolescent Care 49<br />

Obta<strong>in</strong><strong>in</strong>g a thorough health and behavioral history<br />

Summariz<strong>in</strong>g <strong>in</strong>terview response data for cl<strong>in</strong>ician’s and educator’s use<br />

Identify<strong>in</strong>g and prioritiz<strong>in</strong>g problem areas and health needs<br />

Provid<strong>in</strong>g appropriate health advice and local referrals<br />

� Age-specific anticipatory guidance<br />

� Pert<strong>in</strong>ent, succ<strong>in</strong>ct health education videos<br />

� Understandable take-home materials<br />

5.4.3 Facilitat<strong>in</strong>g Communication with Adolescent Patients<br />

Adolescents comfort with <strong>in</strong>formation and communication tools and devices and<br />

their grow<strong>in</strong>g ubiquity may facilitate health care. Most messag<strong>in</strong>g (cell phone, short<br />

messag<strong>in</strong>g services (SMS or text<strong>in</strong>g) ) between cl<strong>in</strong>ic and adolescents is free of<br />

office visit charges and confidential bill<strong>in</strong>g issues. Useful functions for adolescent<br />

care <strong>in</strong>clude provid<strong>in</strong>g answers for confidential cl<strong>in</strong>ical matters and appo<strong>in</strong>tment<br />

rem<strong>in</strong>ders. Use of electronic communication tools, such as cell phones, e-mail,<br />

secure electronic messag<strong>in</strong>g and text messag<strong>in</strong>g is covered <strong>in</strong> Chapter 23.<br />

5.4.4 Improv<strong>in</strong>g Access to Teen <strong>Health</strong> Information<br />

When children reach the age to consent to certa<strong>in</strong> confidential services (varies by<br />

state), laws regard<strong>in</strong>g proxy access to patient health <strong>in</strong>formation apply. At this po<strong>in</strong>t,<br />

parents/guardians lose their right to access a child’s (adolescent) record (unless there<br />

are issues of patient competency). The impact of this has many dimensions. In addition<br />

to adolescent privacy issues, there may be health issues that the parent/guardian<br />

has not disclosed to the child. Communication and <strong>in</strong>formation access plans should<br />

notify caregivers and patients about local laws and practice policies regard<strong>in</strong>g proxy<br />

access to teen PHI, <strong>in</strong>clud<strong>in</strong>g the age at which a teen can legally consent to procedures/treatments<br />

(which is also the age at which the teen alone is allowed direct<br />

access to the medical record regard<strong>in</strong>g those procedures/treatments).<br />

Direct access by teens is impacted by the <strong>Child</strong>ren’s Onl<strong>in</strong>e Privacy Protection<br />

Act, which requires “verifiable parental consent” for onl<strong>in</strong>e transactions (i.e., direct<br />

access) for children under the age of 13. In addition, unanticipated disclosures may<br />

result from bus<strong>in</strong>ess/<strong>in</strong>surance notifications of care (as <strong>in</strong> Case Study 1).<br />

5.4.5 Educat<strong>in</strong>g Teens About <strong>Health</strong><br />

Appropriate anticipatory and rout<strong>in</strong>e health guidance may be provided by a variety<br />

of <strong>in</strong>formation technology and media with<strong>in</strong> the cl<strong>in</strong>ic sett<strong>in</strong>g (audio-visual materials,<br />

computer-based <strong>in</strong>teractive multimedia, and/or vetted Internet sites). 20,21

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