Pediatric Informatics: Computer Applications in Child Health (Health ...

6 Children with Developmental Disorders and Other Special Needs 65
populations which is CSHCN. 72,73 To realize these benefits fully for CSCHN, pediatricians
must participate in planning of health care IT in integrated systems by:
Educating IT professionals of the unique and special needs of CSHCN
Participating in the design and adoption of IT tools that facilitate data collection
from patients, improve access to care and allow timely analysis of patient
outcomes
Demonstrating to policy makers and other stakeholders by using IT to collect
data on unmet needs that low reimbursements and related issues have led to difficulties
in providing adequate care for CSHCN
Serving as local and national champions to garner grassroots support for the
needs of CSHCN to be represented in IT development that supports the Medical
Home and all its functions in providing chronic care management
The growing population of CSHCN will require resources, expertise and development
of information tools to improve the health and to protect the rights of this
vulnerable group of children.
References
1. Rehabilitation Act of 1973 (Section 504), PL 93–112. (1973). 29 U.S.C. §§ 701 et. seq.
2. Americans with Disabilities Act (ADA), Public Law 101–336 (1990), 42 U.S.C. § 12101
et. seq.
3. Education for All Handicapped Children Act, Public Law 94 142 (1975) 20 U.S.C. § 1400
et. Seq.
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6. Technology-Related Assistance for Individuals with Disabilities Act, Public Law 100–407
(1988), 29 U.S.C. §§ 2201 et. seq.
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12. American Academy of Pediatrics Council on Children With Disabilities, Section on
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