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Pediatric Informatics: Computer Applications in Child Health (Health ...

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4 Neonatal Care and Data 37<br />

4.6.3 Immunizations<br />

Premature <strong>in</strong>fants currently are covered by the same immunization schedule as term<br />

<strong>in</strong>fants. A 24 week gestational age premature <strong>in</strong>fant receives 2 month immunizations<br />

at a post-menstrual age of 32 weeks. It is not uncommon for very premature<br />

<strong>in</strong>fants to be hospitalized for months, with multiple immunizations given <strong>in</strong> the<br />

hospital.<br />

Palivizumab, a monoclonal antibody aga<strong>in</strong>st respiratory syncytial virus (RSV),<br />

is recommended to prevent RSV <strong>in</strong>fection <strong>in</strong> many premature <strong>in</strong>fants or those<br />

with chronic lung or congenital heart disease. Eligible <strong>in</strong>fants should be given as<br />

monthly <strong>in</strong>jections dur<strong>in</strong>g the RSV season, for up to the first 2 years of life. 47<br />

Communication of adm<strong>in</strong>istered immunization, dates, and adverse reactions,<br />

must be communicated to the primary care physician to avoid lapses and unnecessary<br />

duplication of immunization doses.<br />

4.6.4 Ret<strong>in</strong>opathy of Prematurity<br />

Ret<strong>in</strong>opathy of prematurity (ROP) refers to the disordered growth of blood vessels<br />

supply<strong>in</strong>g the develop<strong>in</strong>g ret<strong>in</strong>a. Very premature <strong>in</strong>fants are at greatest risk for<br />

ROP and its sequelae because of the underdevelopment of ret<strong>in</strong>al vessels. Regular<br />

eye exams by a pediatric ophthalmologist are necessary to monitor the growth of<br />

ret<strong>in</strong>al blood vessels and for the development and progression of ROP. Frequency<br />

of ophthalmologic exam<strong>in</strong>ations is scheduled accord<strong>in</strong>g to disease progression, the<br />

risk of complications (permanent bl<strong>in</strong>dness) and the need for <strong>in</strong>tervention (ret<strong>in</strong>al<br />

ablative surgery) to lessen the risk for ret<strong>in</strong>al detachment. 48, 49 Neonatal follow-up<br />

track<strong>in</strong>g systems for premature <strong>in</strong>fants should <strong>in</strong>clude the ability to track schedul<strong>in</strong>g,<br />

completion, and reports of ophthalmology exams to the primary care physician<br />

and to parents to ensure appropriate future care. 49<br />

4.7 Specific Issues for Neonatal Information Systems<br />

4.7.1 Handl<strong>in</strong>g Infant Name Changes<br />

Although many <strong>in</strong>fants assume the shared surname of parents, particularly if they<br />

are married, a significant portion of <strong>in</strong>fants will not reta<strong>in</strong> the surname <strong>in</strong>itially<br />

assigned by the birth hospital. Changes <strong>in</strong> parental marital and legal status, as well<br />

as adoption, may result <strong>in</strong> <strong>in</strong>fant name changes. These issues (and potential for<br />

errors) are <strong>in</strong>creased with multiple gestations and <strong>in</strong>fants with the same name <strong>in</strong> the<br />

same nursery, and when the <strong>in</strong>fant is discharged to follow-up with the primary care

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