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Public Health Law Map - Beta 5 - Medical and Public Health Law Site

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unauthorized release of private medical information. The issue because preventing the<br />

discovery of a patient's HIV status, <strong>and</strong>, if the patient knew he was HIV positive,<br />

keeping the information out the patient's medical records <strong>and</strong> even keeping the<br />

information from the patient's physician. As discussed in the section on <strong>Public</strong> <strong>Health</strong>,<br />

this had a profound effect on public health practice <strong>and</strong> research. <strong>Medical</strong> privacy soon<br />

became a general patient's rights issue <strong>and</strong> not just a concern for persons with AIDS.<br />

The fear was discrimination in the workplace <strong>and</strong> the loss of health insurance.<br />

Workplace discrimination was a real problem related to medical privacy <strong>and</strong> lead to<br />

the passage of the Americans with Disabilities Act, which is discussed later in this<br />

section. Although fears about having losing one's medical insurance were used to drive<br />

medical privacy laws, insurability is not really a privacy issue.<br />

People with individual, as opposed to group, medical insurance policies often lose their<br />

insurance if they develop a chronic disease. People with chronic diseases who are<br />

uninsured, or whose employers quit offering group medical insurance, have a lot of<br />

trouble finding coverage, <strong>and</strong> when they do it is very expensive. Until fairly recently,<br />

persons with chronic illness who were covered by group insurance could have<br />

coverage for their illness excluded from coverage if they changed employers. Many<br />

people saw this as a privacy problem that could be solved if they just had stronger<br />

privacy laws to protect medical information.<br />

B. A Historical Perspective<br />

<strong>Medical</strong> records evolved as part of the development of modern medicine in the late<br />

19th <strong>and</strong> early 20the century. <strong>Medical</strong> records started as simple notes to remind<br />

physicians who their patients were, what they had been seen for, <strong>and</strong> what has been<br />

prescribed for them. There was no team care <strong>and</strong> few patients went to hospital.<br />

Physicians saw relatively few patients <strong>and</strong> would see the same patients for years,<br />

making it less important to record every detail of the encounter. There was also much<br />

less to record because there were few diagnostic tests <strong>and</strong> a limited pharmacy. Even if<br />

a patient were admitted to hospital, hospitals provided nursing, custodial, food, <strong>and</strong><br />

hotel services, not modern day medical services. Nursing was low- technology patient<br />

care. What laboratory work that was performed was often done by the physician. The<br />

nurses, often nuns, were available night <strong>and</strong> day <strong>and</strong> knew the patient’s condition <strong>and</strong><br />

needs. <strong>Medical</strong> records served as documentation but were not a primary vehicle for<br />

communication between medical care providers. Simple narrative reporting was used<br />

because there were few events to record <strong>and</strong> little need for retrieving information from<br />

the record.<br />

<strong>Medical</strong> records were kept as much for business purposes as for medical care. They<br />

were used to make out bills <strong>and</strong> to allow the physician to send letters to patients if he<br />

were to move his practice. There was no medical insurance so there was no reason to<br />

share medical information with anyone else. The records might be transferred to<br />

another physician if the physician died or went out of practice. Patient access to<br />

records was not an issue, both because the records were so limited <strong>and</strong> because there<br />

was little occasion for patients to need access for insurance or legal purposes. The law<br />

assumed that medical records were simply business records that belonged to the<br />

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