Rapporten - SBU

Table 5.21 continued
Author
Year
Reference
Country
Clarke et al
2008
[1]
Canada
Material
Analysis method
The first 30 blogs from each perspective;
“Aspies” and parents/
caretakers, by selected from a
Google search using the term
Asperger blogs during one day
Qualitative content analysis
of 2 x 30 blogs
Emerging themes were noted
after rereading the summaries
of the blogs
Majority of bloggers were females
and older than 20 years old, al-
though gender /age information
were lacking in one third from
each groups
Informants Results Summary Study quality
Comments
Blogs written by self identified
people with Asperger’s syndrome
and parents/caretakers of people
with AS
346 Autismspektrumtillstånd – diAgnostik och insAtser,
KAPITEL 5 • sysTEmATIsK LITTErATurövErsIKT –
347
vårdens orgAnisAtion och pAtientens delAktighet
Major repeated
frames by:
A. “Aspies”
• Self-pride and
acceptance
• Role of Internet for
maintaining a positive
identity
• Important people
with AS
• Disabling environment
• Opposition to con-
ventional language
B. Parents/caretakers
• Acceptance of dom-
inant definitions and
terms
• Treatment
• Minority opinion
• Opposition to
medicalisation
The majority of parents
argues for early diagnosis,
greater access to
treatment, to elimination
of the disorder, and to
special schools and educational
programmes
pAtientens delAktighet vid Ast
The “Aspies” and the parents/
caretakers views are frequently
oppositional to one another
The Aspies argues against a
pathologising and medicalising
perspective, whereas the parents
and caretakers accept the medical
definition, seek assistance and cure
for their children
Aspies have only experienced their
own realities. As children they have
little or no awareness of normative
expectations
A theoretical, methodological,
substantive and practical discus-
sion can increase the understanding
of the “Aspies”
The confusing and difficult protective
role of parents to children with ASD
aiming to socialize, love nurture and
protect is discussed
Moderate
A preliminary and
exploratory study
No random samples
Socioeconomic data
is lacking
Ethic discussion
included
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