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50<br />
paula saukko<br />
This post is a classic example of lay health advice that mixes medical<br />
knowledge, critical commentary on doctors, and intense personal<br />
experience. It can be read as offering important and compassionate<br />
peer advice to o<strong>the</strong>r women on <strong>the</strong> Internet on how to take care of<br />
<strong>the</strong>ir health and negotiate with <strong>the</strong>ir possibly reluctant health-care<br />
providers to avoid <strong>the</strong> tragedy of stillbirth. Still, <strong>the</strong> message can also<br />
be read as drawing general conclusions from a specifi c sad case and<br />
fueling an interventionist approach recommending <strong>the</strong> more potent,<br />
prophylactic treatment in a situation of uncertainty. Both readings are<br />
valid, and illustrate <strong>the</strong> diffi cult and highly emotional decisions women<br />
need to make against new and uncertain medical knowledge when <strong>the</strong>y<br />
are pregnant.<br />
However, what is unusual but interesting about <strong>the</strong> participant’s post<br />
is that it contained a link to a web page her family had constructed<br />
in memory of Thomas, her stillborn baby. The pages display scanned<br />
images from <strong>the</strong> participant’s sonograms at several stages of gestation,<br />
striking baby pictures of Thomas, dressed-up in a cute baby outfi t,<br />
appearing as a beautiful newborn albeit with a bluish hue. There are<br />
also pictures of mo<strong>the</strong>r and fa<strong>the</strong>r holding him and pictures of family<br />
members, including <strong>the</strong> o<strong>the</strong>r children of <strong>the</strong> family at <strong>the</strong> funeral. The<br />
web pages contain a link to <strong>the</strong> list server’s information pages so that<br />
“o<strong>the</strong>r tragedies will be avoided” as well as a link to an organization<br />
that campaigns for issuing birth certifi cates for stillborn babies, legally<br />
acknowledging <strong>the</strong> “birth” and individuality of <strong>the</strong> “beloved baby” (also<br />
Layne, 2003).<br />
The web pages on Thomas evoke many, partly contradictory, discourses.<br />
When I initially analyzed Thomas’s web pages, I was reminded of a<br />
presentation by a clinical geneticist. The presentation was constructed<br />
around a series of slides depicting fetuses with genetic “defects.” Each<br />
of <strong>the</strong> images focused on a “defective” part of <strong>the</strong> bodies of <strong>the</strong> fetuses,<br />
such as missing limbs or extra fi ngers. They also constructed <strong>the</strong> fetuses<br />
as clinical objects, de-individualizing <strong>the</strong>m so that, for example, <strong>the</strong> head<br />
and face of <strong>the</strong> fetus were in often covered with a white cloth. Much<br />
has been written about <strong>the</strong> “ocular” fi xation of medicine, which defi nes<br />
truth as something that is seen from a universal, objective point of view<br />
(e.g., Haraway, 1988). The practice of looking for difference still applies<br />
to clinical genetics, this time supported by biomolecular evidence of a<br />
correspondence between physical appearance and DNA markers.<br />
The images of Thomas are also visually powerful. However, in <strong>the</strong>m<br />
genetics and unborn fetuses/babies come toge<strong>the</strong>r in a different way.<br />
Ra<strong>the</strong>r than genetics being evoked as having identifi ed a defective<br />
fetus to be eliminated; <strong>the</strong> picture of Thomas’s small dead body carries