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the Female Body GOVERNING

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52<br />

paula saukko<br />

to have safer pregnancies or as an act of self-medicalization. This<br />

contradiction refl ects <strong>the</strong> promises and perils embedded in both new<br />

genomic technologies and new communication technologies, which offer<br />

individuals more choices.<br />

Care for <strong>the</strong> Self and O<strong>the</strong>rs<br />

Women’s “caring” in relation to thrombophilia, however, did not stop<br />

at <strong>the</strong> end of pregnancy. The conversations on <strong>the</strong> list illustrated that<br />

caring for family in relation to thrombophilia was a continuous project<br />

for <strong>the</strong> women on <strong>the</strong> list. This caring attitude permeated <strong>the</strong> list and<br />

manifested in a specifi c gendered rhetoric of care for o<strong>the</strong>rs (Gilligan,<br />

1993). Similar gendered rhetoric of care has also been observed in<br />

women’s online self-help lists more generally (see Sharf, 1997), but it<br />

was probably accentuated on <strong>the</strong> thrombophilia list by <strong>the</strong> genetic focus<br />

on families (also Franklin & McKinnon, 2002; Hallowell, 1999).<br />

An issue participants frequently discussed in <strong>the</strong>ir role as mo<strong>the</strong>rs<br />

was whe<strong>the</strong>r to test children for thrombophilia. If <strong>the</strong> decision was to<br />

test, <strong>the</strong>n <strong>the</strong> question often was at what age to test:<br />

My hematologist told me that <strong>the</strong>y wouldn’t test my daughter until<br />

she was 13 or so, as children weren’t at risk. But I see from reading<br />

your messages that some of your kids have had problems at quite a<br />

young age. Do you think I should press <strong>the</strong> doctor to get my daughter<br />

tested?<br />

As with <strong>the</strong> pregnancy, <strong>the</strong> list members typically erred on <strong>the</strong> side of<br />

prevention above all else recommending testing children so as to best<br />

protect <strong>the</strong>m:<br />

I have four children ages 21,18,13 and 11. I had all of <strong>the</strong>m tested<br />

because I believe it is important to have as much medical information<br />

on your children as you can. What if your child breaks a bone and<br />

needs emergency surgery. You will need to know immediately that<br />

your child is in jeopardy of developing clots from <strong>the</strong> surgery and <strong>the</strong><br />

immobilization.<br />

Occasionally a member of <strong>the</strong> group suggested waiting, which would<br />

allow <strong>the</strong> child a “normal” childhood:<br />

I probably would not have <strong>the</strong>m tested before <strong>the</strong> teenage years out<br />

of one simple reason: even if you swear you will let your child live a

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