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A thesis submitted in partial fulfilment of - Etheses - Queen Margaret ...

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103<br />

couldn‟t talk about it… I just stuck to the disability rather than look<strong>in</strong>g at the<br />

disability and the cultural needs… because there was noth<strong>in</strong>g there… (l.1:476ff.)<br />

Speak<strong>in</strong>g <strong>of</strong> her experience <strong>of</strong> attend<strong>in</strong>g a local authority day centre, she suggests the other<br />

disabled people attend<strong>in</strong>g:<br />

were probably th<strong>in</strong>k<strong>in</strong>g what‟s she do<strong>in</strong>g here… she should be with her own folk…<br />

(l.1:510ff.)<br />

What Sur<strong>in</strong>der describes here is a sense <strong>of</strong> rejection by the Asian community because she is<br />

disabled and a simultaneous rejection by the disabled community because she is Asian:<br />

lead<strong>in</strong>g not only to a sense <strong>of</strong> detachment from both communities but also clearly work<strong>in</strong>g<br />

aga<strong>in</strong>st the development <strong>of</strong> a positive disabled identity. Describ<strong>in</strong>g the way that<br />

discrim<strong>in</strong>ation is experienced simultaneously at different po<strong>in</strong>ts <strong>of</strong> identity, Ayesha Vernon<br />

and John Swa<strong>in</strong> have observed that<br />

the more overt the discrim<strong>in</strong>ation, the more heightened one‟s awareness and sense <strong>of</strong><br />

vulnerability around that particular identity (Vernon and Swa<strong>in</strong>, 2002:84).<br />

Sur<strong>in</strong>der‟s experience <strong>of</strong> isolation was made more <strong>in</strong>tense by her sense <strong>of</strong> hav<strong>in</strong>g to divide<br />

herself <strong>in</strong>to dist<strong>in</strong>ct categories. Because at least services have existed for disabled people she<br />

attempted to fit herself with<strong>in</strong> these, even though they were, <strong>in</strong> her words „white-centric‟<br />

(l.1:478). At the same time, this meant expos<strong>in</strong>g herself to racist values, as expressed volubly<br />

by a local authority care worker who told her that „all non-whites should go back to their<br />

own country‟ (l.1:286).<br />

Sur<strong>in</strong>der states that sometimes she is made to feel like „the lowest <strong>of</strong> the low‟ (l.1:525):<br />

not am I only disabled but I‟m… and disabled people aren‟t recognized, but… you<br />

know… below that I‟ve been placed as an Asian disabled person, who is certa<strong>in</strong>ly<br />

not recognized… one iota… (l.1:526ff.)<br />

Restitution and „the Sick Role‟<br />

As Jennie says, she „gets sick‟ <strong>of</strong>:<br />

people com<strong>in</strong>g up and say<strong>in</strong>g “Smile, it might never happen…” all the time... and<br />

th<strong>in</strong>k<strong>in</strong>g they can <strong>in</strong>trude <strong>in</strong> that way… if I‟m just look<strong>in</strong>g miserable… because it‟s<br />

my bus<strong>in</strong>ess if I‟m look<strong>in</strong>g miserable… I have turned round to these people a<br />

number <strong>of</strong> times and said “Well, I would smile… but it‟s a cont<strong>in</strong>u<strong>in</strong>g hideous

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