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A thesis submitted in partial fulfilment of - Etheses - Queen Margaret ...

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55<br />

disability also must be def<strong>in</strong>ed as a more complex social construct, one which<br />

reflects not a benign evolution <strong>of</strong> acceptance but a dynamic set <strong>of</strong> representations<br />

that are deeply embedded <strong>in</strong> historical and cultural contexts (Barton, E.L. 2001:169).<br />

While barriers to access to shops on Pr<strong>in</strong>ces Street may be be<strong>in</strong>g removed, there exists an<br />

ambiguity around mean<strong>in</strong>g and an entrenchment <strong>of</strong> perceptions that cont<strong>in</strong>ue to reflect a<br />

medical/personal tragedy model <strong>of</strong> disability. For example, Jane Campbell argues that the<br />

current debate on legalis<strong>in</strong>g assisted suicide carries a set <strong>of</strong> implicit assumptions rooted <strong>in</strong><br />

fears <strong>of</strong> pa<strong>in</strong>, <strong>of</strong> disability, and <strong>of</strong> be<strong>in</strong>g a burden to others (Campbell, 2006(a): unpaged).<br />

She has stated that the background noise to current discussions around assisted suicide:<br />

is re<strong>in</strong>forc<strong>in</strong>g negative perceptions <strong>of</strong> disability. It feeds <strong>in</strong>to desires for a body<br />

beautiful and a perfect life untroubled by illness. It promotes premature death as a<br />

choice option, especially for people with severe disability or term<strong>in</strong>al conditions<br />

(Campbell, 2006(b):14)<br />

My <strong>thesis</strong> is that while certa<strong>in</strong> barriers to participation <strong>in</strong> ord<strong>in</strong>ary community life may be<br />

be<strong>in</strong>g removed, perceptions <strong>of</strong> impairment as someth<strong>in</strong>g „wrong‟ with the bodies <strong>of</strong> disabled<br />

people, and as a signifier <strong>of</strong> personal tragedy, rema<strong>in</strong> embedded <strong>in</strong> dom<strong>in</strong>ant disability<br />

discourse. There is a structural purpose to the cont<strong>in</strong>ued representation <strong>of</strong> impairment as<br />

unfortunate aberration from normality rooted more deeply than can be addressed by simple<br />

<strong>in</strong>junctions to „change attitudes‟. Subjection to disabl<strong>in</strong>g discourse on an everyday basis can<br />

have a confus<strong>in</strong>g and demoralis<strong>in</strong>g impact on disabled people‟s self-perceptions. The<br />

affirmative model holds promise as a tool for use <strong>in</strong> reflect<strong>in</strong>g on and address<strong>in</strong>g this<br />

subjection. To this purpose, the affirmative model requires clarification.<br />

Why critical social research?<br />

At the heart <strong>of</strong> critical social research is the idea that knowledge is structured by<br />

exist<strong>in</strong>g sets <strong>of</strong> social relations. The aim <strong>of</strong> a critical methodology is to provide<br />

knowledge which engages the prevail<strong>in</strong>g social structures (Harvey, 1990:2).<br />

As Lee Harvey has expla<strong>in</strong>ed, critical social research is not constra<strong>in</strong>ed by its data collection<br />

methods. It is not these that characterise critical social research so much as the ways <strong>in</strong><br />

which data are approached and the framework with<strong>in</strong> which they are analysed. Critical social<br />

research does not concern itself with discover<strong>in</strong>g the „causes‟ <strong>of</strong> observed social phenomena

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