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A thesis submitted in partial fulfilment of - Etheses - Queen Margaret ...

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243<br />

...on top <strong>of</strong> all that you don‟t have language to express these concepts... you can say<br />

that we don‟t have the language <strong>in</strong> English either, and that the disability movement<br />

has had to create a lot <strong>of</strong> that and carve out new contextual mean<strong>in</strong>gs for words... but<br />

the problem you have with languages like Urdu and Punjabi is all <strong>of</strong> the language we<br />

have is <strong>in</strong> the negative... every s<strong>in</strong>gle th<strong>in</strong>g... even the words that are used to def<strong>in</strong>e<br />

or to describe certa<strong>in</strong> impairments are all based on what you can‟t do... so whereas<br />

here we would talk about somebody as be<strong>in</strong>g visually impaired a literal translation <strong>of</strong><br />

that <strong>in</strong>to Urdu and Punjabi would be can‟t see... or their eyes don‟t function... or<br />

don‟t work... (l.3:86ff.)<br />

Sur<strong>in</strong>der, one <strong>of</strong> the women <strong>in</strong> the group, said that this difficulty is compounded by the<br />

cultural silence about or avoidance <strong>of</strong> discussion <strong>of</strong> disability: „Because disabled people are<br />

hidden away these words are just not used‟ (l.3:330) When even negative descriptions <strong>of</strong><br />

impairment are rarely heard because the subject is felt to be shameful, the activity <strong>of</strong><br />

generat<strong>in</strong>g an alternative discourse becomes an impossible task.<br />

So <strong>of</strong>ten do they hear that they are good-for-noth<strong>in</strong>g, know noth<strong>in</strong>g and are <strong>in</strong>capable <strong>of</strong><br />

learn<strong>in</strong>g anyth<strong>in</strong>g – that they are sick, lazy and unproductive – that <strong>in</strong> the end they<br />

become conv<strong>in</strong>ced <strong>of</strong> their own unfitness (Friere, 1974:45).<br />

Friere‟s words are given a chill<strong>in</strong>g echo <strong>in</strong> Kailyn‟s:<br />

You hear so <strong>of</strong>ten you‟re rubbish that you end up believ<strong>in</strong>g it... (l.3:331)<br />

While this work <strong>in</strong>volves address<strong>in</strong>g some extremely sensitive issues, Roshni was clear that<br />

it was not a heavy experience all the time. She talked about the way <strong>in</strong> which the women<br />

<strong>in</strong>volved frequently used it as a safe space with<strong>in</strong> which to sound <strong>of</strong>f (l.3:248):<br />

everyone‟s up and out there... and a bit loud and a bit silly... and not very p.c... but<br />

learn<strong>in</strong>g a lot... and learn<strong>in</strong>g <strong>in</strong> a very different way... (l.3:113)<br />

It is not that the experience <strong>of</strong> be<strong>in</strong>g disabled is to be affirmed, but that an affirmative stance<br />

taken <strong>in</strong> relation to the impaired self <strong>in</strong> the face <strong>of</strong> oppression can lead to immense<br />

satisfaction. Towards the end <strong>of</strong> our discussion, Roshni talked about why she values the<br />

opportunity <strong>of</strong> com<strong>in</strong>g together with other disabled people. While people may have had very<br />

different life experiences, her view is that:<br />

...because all <strong>of</strong> you have that one shared experience <strong>of</strong> that discrim<strong>in</strong>ation, as it<br />

were... so you are able to connect with it and share it... but at the same time, by

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