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A thesis submitted in partial fulfilment of - Etheses - Queen Margaret ...

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otherwise. It also establishes their rights to have great days and ord<strong>in</strong>ary days as well as crap<br />

days, to enjoy be<strong>in</strong>g who they are as people with impairments rather than regard<strong>in</strong>g<br />

impairment as a cloud overshadow<strong>in</strong>g every aspect <strong>of</strong> their existence. It demands a<br />

recognition <strong>of</strong> impairment as an ord<strong>in</strong>ary rather than an extraord<strong>in</strong>ary characteristic <strong>of</strong><br />

human experience, and for <strong>in</strong>clusion with<strong>in</strong> ord<strong>in</strong>ary life on that basis. For me this is<br />

succ<strong>in</strong>ctly summed up by Sarah P., a woman who has posted a comment on an <strong>in</strong>terview<br />

about my research on the website Disability Arts Onl<strong>in</strong>e:<br />

157<br />

This rem<strong>in</strong>ds me how important it is to not apologiz<strong>in</strong>g for who you are <strong>in</strong> any way<br />

(Hambrook, 2009: unpaged)<br />

This affirmative model identifies disability as a productive as well as a restrictive<br />

relationship. In identify<strong>in</strong>g disability as a personal and social role, it <strong>in</strong>volves a recognition<br />

<strong>of</strong> the k<strong>in</strong>d <strong>of</strong> actors people with impairments are required to become. Whether this <strong>in</strong>volves<br />

passive dependency or triumph over tragedy, either way negates the lived experience <strong>of</strong><br />

impairment and signifies the desirability <strong>of</strong> normality.<br />

I don‟t blame the person, I th<strong>in</strong>k it‟s just all about self-awareness... it‟s all about the<br />

<strong>in</strong>dividual... how you deal with yourself first... you know, it‟s all about look<strong>in</strong>g at<br />

yourself... most <strong>of</strong> it is about look<strong>in</strong>g at yourself... (l.1:448)<br />

Sur<strong>in</strong>der‟s words return me to the argument I made at the beg<strong>in</strong>n<strong>in</strong>g <strong>of</strong> my literature search.<br />

Disability is a thoroughly exploitative relationship because simultaneously it disadvantages<br />

people with impairments and those considered non-impaired. Just as be<strong>in</strong>g a disabled person<br />

<strong>in</strong>volves act<strong>in</strong>g out an imposed role so does be<strong>in</strong>g a non-disabled person. While to an extent,<br />

<strong>in</strong> Markell‟s terms, non-disabled people are <strong>in</strong>sulated from hav<strong>in</strong>g to address their own<br />

temporality, this is distraction which avoids the necessity <strong>of</strong> fac<strong>in</strong>g personal existential<br />

questions. The <strong>in</strong>terests <strong>of</strong> the dom<strong>in</strong>ant social classes have no need <strong>of</strong> grounded human<br />

be<strong>in</strong>gs but only <strong>of</strong> consumers. In Richard Schmitt‟s words, „the market economy advances<br />

alienation by push<strong>in</strong>g us towards conformity‟ (Schmitt, 2003:107).<br />

Sur<strong>in</strong>der recalls herself before her diagnosis with MS as hav<strong>in</strong>g been shallow <strong>in</strong> comparison<br />

with the person she is now:<br />

I th<strong>in</strong>k as me as a non-disabled person <strong>in</strong> the past, no I wasn‟t happy… I wasn‟t<br />

happy… but then, I didn‟t know myself then… and didn‟t have that awareness that<br />

I have now… (l.1:795ff.)

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