A thesis submitted in partial fulfilment of - Etheses - Queen Margaret ...

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273 Appendix A: Introductory Letter Participants Sought For PhD Research into Disability Identity Colin Cameron, School of Media, Communication & Sociology, Queen Margaret University, Edinburgh I am a disabled PhD researcher at Queen Margaret University, Edinburgh. I am currently looking for 10-12 disabled people (anywhere in Britain) who would be interested in taking part in a series of interviews on disability identity. This would involve talking about ways that people think about themselves, experiences that have led them to think the way they do, messages about being disabled they have been given as members of families, communities, society. I would like to involve: people who have really strong & positive disability identities, maybe activists involved in campaigning activity in the disabled people‟s movement; people for whom being disabled is just a fact of life, something to get on with, but not really something to go on about; people who really hate being disabled & who can‟t see anything good in the experience Participants would each be asked to take part in three interviews in a series of different situations reflecting different parts of their lives. Interviews will be fairly informal, organised loosely around the themes „Who am I?‟ & „How do I fit into the world?‟ The social model of disability – the view that people are disabled by physical & social barriers rather than by their own impairments - will be the underlying principle upon which this research is based. Interviews will be carried out between October 2007 & October 2008. If you are interested in finding out more about this research – either because you would like to be involved as a participant or because you would like to pass information to someone you know who might be interested - please contact: Colin Cameron PhD Research Student School of Media, Communication & Sociology Queen Margaret University Corstorphine Edinburgh EH12 8TS Email: ccameron@qmu.ac.uk Tel: 01368 864548 Full confidentiality is guaranteed. This research has ethical approval from Queen Margaret University.
274 Appendix B: Email Extracts I have reproduced here extracts from a number of emails I received as initial responses to my request for research participants. I have chosen these as examples of the types of responses I received and in terms of the categories into which I placed them. These categories were identified in terms of ways in which respondents described themselves as relating to the experience of being disabled (really positive; just getting on with it; identify negatively; a bit of all three). Unless permission has been given by people to use real names, all personal and place names are disguised. Really positive I have received an email from Pam Deepdale at uni in Brum regarding your research. This is a field I am really interested in from the perspective of autistic advocacy, and the identity politics of the disability movement in the UK, that I have also identified with (Ben, selected) I have just read an article in the Xchange Network magazine regarding your proposed research. I am a 67 year old disabled male who campaigns for the rights of the disabled, as secretary of the Lowlands Coalition of Disabled People and a Director of the Lowlands Council of Voluntary Service I am in contact with my fellow disabled almost on a daily basis (Arthur, not selected) Just getting on with it As per the attached short Bio, I guess I fall into the category of „just getting on with it‟, or possibly slightly into the activist camp... In 1986, Derek competed in his first major disabled competition – a six nations waterski event in Sweden. He went on from there to participate in almost every European and World Championships until retiring in 2003. His main events were slalom and jump and he held numerous world records in both events, and amassed over two dozen gold medals for individual and team placement at European and World championships... (Derek, not selected) I myself have a progressive condition and as such recognised under the DDA. My condition means I will be taking medication for life, but the medication does enable me to enjoy day to day living as a non disabled person (Hazel, selected) I would be most interested in taking part in your research. I am 42 years old and have progressive MS. I work part-time as an information office. I am married and have one son who like his father is hearing impaired. I believe I have a „just get on with it‟ attitude to my
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A thesis submitted in partial fulfi
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Abstract I offer a critical explora
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Contents Introduction p.1 Chapter 1
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When I speak of tensions I mean som
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Sutherland, Richard Rieser and Mich
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Chapter 1: Disability, Self and Ide
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8 Impairment: any loss or abnormali
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unceasing flow of representations,
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a daughter, a Scot, a West Coaster,
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matters of social significance beco
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16 Which individuality a human bein
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In Elias‟ view it is only when th
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20 [I‟m] a normal person. The onl
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acknowledgement of the processes by
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This involves a demand for recognit
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Habitus A useful insight can be dra
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as to have no impact on the rest of
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general public acceptance of the po
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32 the vast and deep injustices tha
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modernity has involved many attempt
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36 the affirmation of unique ways o
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described rather than having to rev
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Personal Experience On April 6, 197
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1100 boys from all over South Bucki
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mother did her best to discourage t
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46 mind, but to the society in whic
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ut is experienced in the terms of s
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Chapter 3: Methodology Why am I res
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52 developing a theory, usually bas
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Hamer expresses a view here that
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nor is it satisfied with the interp
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Why not grounded theory? 58 The int
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60 We set aside our prejudgements,
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events for disabled peoples‟ orga
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populations (Atkinson and Flint, 20
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terms of other groups of individual
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Jennie, a woman in her mid-thirties
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(Kusenbach, 2003) in which I accomp
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to me. I had expected interviewing
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74 that we go about the daily neces
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Participants returned the scripts r
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l = line 1: = interview number 24ff
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80 I‟m being pushed into a subjec
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The emergence of a sense of differe
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84 I saw the other disabled kids an
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work and independent living, the ch
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88 all the time we were extolled to
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The theme is repeated that being in
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Hazel struggled to recall any other
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94 to one of my aunties‟ for a pa
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The sense of standing in isolation,
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Rose‟s husband suggests the possi
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100 they feel nervous to ask “Wel
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102 extent, you know, I spent… un
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104 pain…” (laughs)… “Do yo
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ound the hat rack‟. Her relief at
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108 definite contexts of meanings c
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What I find compelling in Thomas‟
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within different discourses. While
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My revised definition of disability
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Chapter 5: Disability as Role Intro
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Person-first thinking is supported
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120 minicom… but these are just
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A different reason A related, thoug
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124 never mind…” does not impro
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126 abnormal, if you like, and more
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less powerful social group. Indeed,
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130 was a case of I just cut off al
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132 I can remember having an argume
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134 there‟s never any representat
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people regard other disabled people
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138 earth haven‟t you had a shag
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140 Sadie used to do amazing things
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Lola recalls that she was regarded
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144 weekly… I get on really fine
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146 situations together… erm… c
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In gaining an understanding of the
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however, their descriptions of havi
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152 more often than not they are me
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to negative subject positioning, wi
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significance of impairment, this ha
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As someone with adult experience of
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argues, by the repetitive, structur
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162 psychologically speaking, this
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usually involve blind characters be
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166 other indecent part of it … a
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It begins to appear that the proble
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170 on Direct Payments or Individua
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172 increasingly becomes more impor
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Anne‟s statement here reflects th
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176 Society really does view all di
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Unsurprisingly, I reject Ouellette
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Initially Ali confesses to watching
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as „awful‟ - we can see again t
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184 you‟ve been brought up and ho
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debate the choices that are display
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188 media stereotypes - of race, ag
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190 I didn‟t start noticing them
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192 think about it… if it was…
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William Stothers, who describes him
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Opportunities for disabled people t
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198 part of society watching the te
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Chapter 7: Disability in Everyday L
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always somebody worse off‟ natura
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lasted several hours and others onl
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caught by something else she wanted
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“At the moment you‟re looking a
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The camera has already focussed upo
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Given that Cumberbatch and Negrine
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What‟s going on? Emma Bowler rece
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216 characters in that that were re
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While he described himself as takin
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experienced by Donald as he waited
Page 227 and 228: 222 get back to Dundee... will Angu
Page 229 and 230: my feet were broken I spent three m
Page 231 and 232: are looking maybe they‟re not but
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Page 235 and 236: Toby Miller and Alec McHoul discuss
Page 237 and 238: Erin was waiting in the chairs insi
Page 239 and 240: Or if I do I want to be employed do
Page 241 and 242: crammed bookcases and decorated wit
Page 243 and 244: 238 society, er … like, life... I
Page 245 and 246: 240 (l.3:503ff.) While the transcri
Page 247 and 248: sense of solidarity and purpose tha
Page 249 and 250: 244 sharing it you gain so much str
Page 251 and 252: space (l.3:140ff.) It was only duri
Page 253 and 254: 248 Well... the point is the way I
Page 255 and 256: 250 Sartre describes how the act of
Page 257 and 258: ought their children along. Neither
Page 259 and 260: Conclusion I conclude by re-visitin
Page 261 and 262: 256 dealings with the world is when
Page 263 and 264: of the affirmative model will hold
Page 265 and 266: References Access 4 U 2 (2009) Term
Page 267 and 268: Burchardt, T. (2005) The education
Page 269 and 270: Elias, N. (2000) The Civilising Pro
Page 271 and 272: Klages, M. (1999) Woeful Affliction
Page 273 and 274: Paralympics.com (2004) Paralympian
Page 275 and 276: Stevens, S. (2008) „Movement Does
Page 277: Wilson, T. (1995) Watching Televisi
Page 281 and 282: I first of all must say that I thin
Page 283 and 284: The discussion, comments and observ
Page 285 and 286: 280 Appendix D: Themes arising from
Page 287 and 288: 10. Political identity as disabled
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