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A thesis submitted in partial fulfilment of - Etheses - Queen Margaret ...

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Chapter 5: Disability as Role<br />

Introduction<br />

In this chapter I cont<strong>in</strong>ue discuss<strong>in</strong>g themes raised by participants dur<strong>in</strong>g the first series <strong>of</strong><br />

<strong>in</strong>terviews. This leads me to explore ways <strong>in</strong> which disabled people participate with<strong>in</strong><br />

ma<strong>in</strong>stream disability discourses or, alternatively, with<strong>in</strong> what Foucault has termed reverse<br />

discourses through which impairment is beg<strong>in</strong>n<strong>in</strong>g to speak on its own behalf to demand<br />

acknowledgement <strong>of</strong> its own „naturality‟ (Foucault, 1998). I do this <strong>in</strong> order to consider the<br />

validity <strong>of</strong> my suggestion that disability can be regarded as an <strong>in</strong>validat<strong>in</strong>g role <strong>in</strong> the context<br />

<strong>of</strong> a cont<strong>in</strong>u<strong>in</strong>g discussion about the affirmative model.<br />

Intrusion<br />

For some participants <strong>in</strong>itial identification as disabled was experienced <strong>in</strong> relation to<br />

eligibility to receive benefits. Recognis<strong>in</strong>g the self as disabled, then, can be associated with a<br />

practical orientation to be<strong>in</strong>g <strong>in</strong> the world. It is someth<strong>in</strong>g one does to get by. Helen recalls<br />

an awaken<strong>in</strong>g association <strong>in</strong> her m<strong>in</strong>d:<br />

116<br />

a friend <strong>of</strong> m<strong>in</strong>e said to me... you can apply for benefits now… and I said<br />

don‟t be ridiculous, and she said no, seriously, you can probably apply for DLA and<br />

all sorts <strong>of</strong> th<strong>in</strong>gs on the grounds <strong>of</strong> your mental health problems… and only then,<br />

once I‟d applied for those, was I oh, right, yeah, that does mean I k<strong>in</strong>d <strong>of</strong>… and then<br />

I began to realise that I‟m classed as disabled, if that makes sense… (l.325ff.)<br />

Helen‟s follow<strong>in</strong>g comment reveals a perception that identify<strong>in</strong>g as disabled <strong>in</strong>volves<br />

com<strong>in</strong>g to recognise oneself as fitt<strong>in</strong>g <strong>in</strong> to a pre-def<strong>in</strong>ed role with<strong>in</strong> a system.<br />

...but now that I have these specific labels it means that I can fit <strong>in</strong> to a lot <strong>of</strong> different<br />

categories and… I guess the difference to me is that… erm… and it feels like you‟re<br />

k<strong>in</strong>d <strong>of</strong> play<strong>in</strong>g the system <strong>in</strong> a way… even though you‟re not… and if this is written<br />

<strong>of</strong>ficially on a medical book or paper, then you can apply for certa<strong>in</strong> benefits and th<strong>in</strong>gs,<br />

and when you‟re apply<strong>in</strong>g for a job you can tick the yeah, I‟m disabled box, and get<br />

the… you know… (l.1:376ff.).<br />

The disabled role is established. Helen‟s words <strong>in</strong>dicate that all that is required is the characters<br />

to play this role. While she speaks <strong>of</strong> feel<strong>in</strong>g as if she is play<strong>in</strong>g the system, the system draws her<br />

<strong>in</strong>.

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