A thesis submitted in partial fulfilment of - Etheses - Queen Margaret ...
A thesis submitted in partial fulfilment of - Etheses - Queen Margaret ...
A thesis submitted in partial fulfilment of - Etheses - Queen Margaret ...
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Chapter 5: Disability as Role<br />
Introduction<br />
In this chapter I cont<strong>in</strong>ue discuss<strong>in</strong>g themes raised by participants dur<strong>in</strong>g the first series <strong>of</strong><br />
<strong>in</strong>terviews. This leads me to explore ways <strong>in</strong> which disabled people participate with<strong>in</strong><br />
ma<strong>in</strong>stream disability discourses or, alternatively, with<strong>in</strong> what Foucault has termed reverse<br />
discourses through which impairment is beg<strong>in</strong>n<strong>in</strong>g to speak on its own behalf to demand<br />
acknowledgement <strong>of</strong> its own „naturality‟ (Foucault, 1998). I do this <strong>in</strong> order to consider the<br />
validity <strong>of</strong> my suggestion that disability can be regarded as an <strong>in</strong>validat<strong>in</strong>g role <strong>in</strong> the context<br />
<strong>of</strong> a cont<strong>in</strong>u<strong>in</strong>g discussion about the affirmative model.<br />
Intrusion<br />
For some participants <strong>in</strong>itial identification as disabled was experienced <strong>in</strong> relation to<br />
eligibility to receive benefits. Recognis<strong>in</strong>g the self as disabled, then, can be associated with a<br />
practical orientation to be<strong>in</strong>g <strong>in</strong> the world. It is someth<strong>in</strong>g one does to get by. Helen recalls<br />
an awaken<strong>in</strong>g association <strong>in</strong> her m<strong>in</strong>d:<br />
116<br />
a friend <strong>of</strong> m<strong>in</strong>e said to me... you can apply for benefits now… and I said<br />
don‟t be ridiculous, and she said no, seriously, you can probably apply for DLA and<br />
all sorts <strong>of</strong> th<strong>in</strong>gs on the grounds <strong>of</strong> your mental health problems… and only then,<br />
once I‟d applied for those, was I oh, right, yeah, that does mean I k<strong>in</strong>d <strong>of</strong>… and then<br />
I began to realise that I‟m classed as disabled, if that makes sense… (l.325ff.)<br />
Helen‟s follow<strong>in</strong>g comment reveals a perception that identify<strong>in</strong>g as disabled <strong>in</strong>volves<br />
com<strong>in</strong>g to recognise oneself as fitt<strong>in</strong>g <strong>in</strong> to a pre-def<strong>in</strong>ed role with<strong>in</strong> a system.<br />
...but now that I have these specific labels it means that I can fit <strong>in</strong> to a lot <strong>of</strong> different<br />
categories and… I guess the difference to me is that… erm… and it feels like you‟re<br />
k<strong>in</strong>d <strong>of</strong> play<strong>in</strong>g the system <strong>in</strong> a way… even though you‟re not… and if this is written<br />
<strong>of</strong>ficially on a medical book or paper, then you can apply for certa<strong>in</strong> benefits and th<strong>in</strong>gs,<br />
and when you‟re apply<strong>in</strong>g for a job you can tick the yeah, I‟m disabled box, and get<br />
the… you know… (l.1:376ff.).<br />
The disabled role is established. Helen‟s words <strong>in</strong>dicate that all that is required is the characters<br />
to play this role. While she speaks <strong>of</strong> feel<strong>in</strong>g as if she is play<strong>in</strong>g the system, the system draws her<br />
<strong>in</strong>.