A thesis submitted in partial fulfilment of - Etheses - Queen Margaret ...
A thesis submitted in partial fulfilment of - Etheses - Queen Margaret ...
A thesis submitted in partial fulfilment of - Etheses - Queen Margaret ...
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significance <strong>of</strong> impairment, this has sometimes been subjectively experienced as caus<strong>in</strong>g<br />
anxiety. As Brian says:<br />
156<br />
...at that time, <strong>in</strong> the mid-90s, there was very much an over-arch<strong>in</strong>g sense <strong>in</strong> which<br />
<strong>in</strong>dividuals‟ personal difficulties <strong>in</strong> liv<strong>in</strong>g with impairment issues was very much…<br />
if you talked about your experience <strong>in</strong> terms… <strong>of</strong>… erm…<strong>in</strong> terms <strong>of</strong> suffer<strong>in</strong>g… <strong>in</strong><br />
terms <strong>of</strong> someth<strong>in</strong>g that wasn‟t imposed from without…then you were pretty<br />
much… erm… you could expect to get k<strong>in</strong>d <strong>of</strong> quite a short shrift from with<strong>in</strong> the<br />
disability movement… and I th<strong>in</strong>k, you know, the questions are very, very<br />
complex…(l.1:334ff.)<br />
Brian‟s words express a claim made by disabled people who would criticise the social model<br />
(Oliver, 2004). A need is felt to be able to talk openly about impairment and impairment<br />
effects as these are experienced by <strong>in</strong>dividuals <strong>in</strong> everyday life without giv<strong>in</strong>g credence to<br />
the medical model.<br />
The affirmative model I proposed <strong>in</strong> the previous chapter names impairment as a<br />
characteristic <strong>of</strong> difference, divergent from culturally valued norms <strong>of</strong> embodiment, to be<br />
expected and respected on its own terms <strong>in</strong> a diverse society. It creates a space <strong>in</strong> which<br />
impairment can be owned as someth<strong>in</strong>g that can be experienced positively, negatively, or<br />
both at different times, and which can sometimes <strong>in</strong>volve the darkness that pa<strong>in</strong> br<strong>in</strong>gs, yet is<br />
at the same time to be valued. This is a position which problematises the utilitarian<br />
dist<strong>in</strong>ction between pleasure (or good, or convenience, or advantage, benefit, happ<strong>in</strong>ess, and<br />
so forth) and pa<strong>in</strong> (or evil, or <strong>in</strong>convenience, or disadvantage, or loss, or unhapp<strong>in</strong>ess, and so<br />
forth) (Bentham, 1987:89). With<strong>in</strong> such a schema, underly<strong>in</strong>g contemporary assumptions<br />
about disability, pa<strong>in</strong> can only be regarded as someth<strong>in</strong>g deserv<strong>in</strong>g pity, disapproval and<br />
avoidance.<br />
Rod Michalko suggests that impairment is <strong>in</strong>dicative <strong>of</strong> the fragility <strong>of</strong> the human body and<br />
subversive <strong>in</strong> its power to <strong>in</strong>dicate the fragility <strong>of</strong> the body politic:<br />
The disruption <strong>of</strong> contemporary hegemonic ideas <strong>of</strong> reason over passion and m<strong>in</strong>d<br />
over body is perhaps disability‟s greatest possibility. Disability disrupts society‟s<br />
carefully structured and multilayered façade beh<strong>in</strong>d which it hides the human body<br />
together with its fragility and vicissitudes (Michalko, 2002:166).<br />
The affirmative model establishes the rights <strong>of</strong> people with impairments to feel okay about<br />
themselves and to take pride <strong>in</strong> who they are even when they are hav<strong>in</strong>g crap days, and to be<br />
able to have crap days as well as great days or ord<strong>in</strong>ary days without hav<strong>in</strong>g to pretend