A thesis submitted in partial fulfilment of - Etheses - Queen Margaret ...
A thesis submitted in partial fulfilment of - Etheses - Queen Margaret ...
A thesis submitted in partial fulfilment of - Etheses - Queen Margaret ...
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events for disabled peoples‟ organisations and had also seen him perform at a number <strong>of</strong><br />
disability arts events. I had first met Lola through a disabled colleague from London who<br />
had told me about her short stories.<br />
I was seek<strong>in</strong>g to identify between ten and twelve participants, each <strong>of</strong> whom I <strong>in</strong>tended to<br />
meet across a series <strong>of</strong> data gather<strong>in</strong>g sessions (outl<strong>in</strong>ed below). Hav<strong>in</strong>g identified two<br />
disabled artists I wanted to identify the rema<strong>in</strong>der <strong>of</strong> my participants from the wider disabled<br />
community. On 17 July 2007 my letter ask<strong>in</strong>g for participants to take part <strong>in</strong> my research<br />
was published as an e-bullet<strong>in</strong> by Inclusion Scotland, the national campaign<strong>in</strong>g organisation<br />
<strong>of</strong> disabled people.<br />
In this letter (Appendix A) I <strong>in</strong>troduced myself as a disabled PhD researcher at <strong>Queen</strong><br />
<strong>Margaret</strong> University, Ed<strong>in</strong>burgh, look<strong>in</strong>g for 10-12 disabled people anywhere <strong>in</strong> Brita<strong>in</strong> who<br />
would be <strong>in</strong>terested <strong>in</strong> tak<strong>in</strong>g part <strong>in</strong> a series <strong>of</strong> <strong>in</strong>terviews on disability identity. I stated that<br />
this would <strong>in</strong>volve talk<strong>in</strong>g about ways that people th<strong>in</strong>k about themselves, experiences that<br />
have led them to th<strong>in</strong>k the way they do, and messages about be<strong>in</strong>g disabled they have been<br />
given as members <strong>of</strong> families, communities, society.<br />
I expla<strong>in</strong>ed <strong>in</strong> the letter that I would like to <strong>in</strong>volve:<br />
62<br />
People who had really strong and positive disability identities, maybe activists<br />
<strong>in</strong>volved <strong>in</strong> campaign<strong>in</strong>g <strong>in</strong> the disabled people‟s movement<br />
People for whom be<strong>in</strong>g disabled is just a fact <strong>of</strong> life, someth<strong>in</strong>g to get on with, but<br />
not really someth<strong>in</strong>g to go on about;<br />
People who really hate be<strong>in</strong>g disabled and who can‟t see anyth<strong>in</strong>g good <strong>in</strong> the<br />
experience<br />
The selection <strong>of</strong> these three different categories <strong>of</strong> people was strategically <strong>in</strong>tended to<br />
reduce the possibility <strong>of</strong> error and bias <strong>in</strong> the data I would collect (L<strong>of</strong>land et al. 2006:93).<br />
By seek<strong>in</strong>g to <strong>in</strong>volve as research participants people com<strong>in</strong>g from different positions <strong>in</strong><br />
relation to the experience <strong>of</strong> disability, I aimed to avoid repetition <strong>of</strong> the same sorts <strong>of</strong><br />
perspectives. Where validity is a euphemism for „the truth‟ (Rodriguez and Ryave, 2002:22),<br />
I considered it likely I would capture a more valid picture <strong>of</strong> the experience <strong>of</strong> disability with<br />
a broader range <strong>of</strong> outlooks. It would have been very easy to argue <strong>in</strong> support <strong>of</strong> the<br />
affirmative model if all the disabled people I <strong>in</strong>terviewed were upbeat about their personal