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A thesis submitted in partial fulfilment of - Etheses - Queen Margaret ...

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Sur<strong>in</strong>der is frank <strong>in</strong> describ<strong>in</strong>g what she saw as the benefits <strong>of</strong> be<strong>in</strong>g classed as disabled:<br />

117<br />

...then I thought well, I am a disabled person… great, that means I can get some help<br />

with all the th<strong>in</strong>gs I need help with, like I don‟t need to go walk<strong>in</strong>g miles, I can get a<br />

park<strong>in</strong>g permit… so there were some advantages to it… (l.1:353ff.)<br />

Rose highlights the fact that for her accept<strong>in</strong>g disability as a personal description was more a<br />

pragmatic issue than one which, on the face <strong>of</strong> it, <strong>in</strong>volved identity issues:<br />

..I still didn‟t th<strong>in</strong>k <strong>of</strong> myself as be<strong>in</strong>g disabled… as be<strong>in</strong>g a member <strong>of</strong> what I now like<br />

to th<strong>in</strong>k <strong>of</strong> as the disability community... I was still, more, I th<strong>in</strong>k, a member <strong>of</strong>… the<br />

whole community and culture… what I wanted to do to… er… try and start gett<strong>in</strong>g help<br />

with… er… th<strong>in</strong>gs like ramps, and walk<strong>in</strong>g sticks and… er, park<strong>in</strong>g discs and so on,<br />

erm... was to get myself registered as a disabled person… (l.1:189ff.)<br />

Tension is experienced here because an unspoken agreement takes place that acceptance <strong>of</strong><br />

entitlement to benefits <strong>in</strong>volves acceptance not just <strong>of</strong> a description as disabled but also <strong>of</strong> the<br />

disabled role. While entitlements are ga<strong>in</strong>ed which go some way towards address<strong>in</strong>g the realities<br />

<strong>of</strong> liv<strong>in</strong>g with impairment <strong>in</strong> a disabl<strong>in</strong>g society, this position <strong>in</strong>volves an acceptance <strong>of</strong> the view<br />

which states that impairment is unfortunate <strong>in</strong>dividual circumstance.<br />

“I see myself as a person with...”<br />

I would see myself as a person with a visual impairment, not a visually-impaired<br />

person… (l.784)<br />

In this statement, Roshni places her sense <strong>of</strong> personhood above her sense <strong>of</strong> be<strong>in</strong>g disabled<br />

and situates herself as a subject <strong>of</strong> what Rod Michalko has called „person-first‟ ideology<br />

(Michalko, 2002:10). Impairment is downplayed and regarded as dist<strong>in</strong>ct from her primary<br />

experience as a person.<br />

Suggest<strong>in</strong>g that disability is merely a secondary feature <strong>of</strong> one‟s identity and that we<br />

are persons first and persons with disabilities disavows both deviance and disability.<br />

It refocuses attention from the disability to the person who happens to have it<br />

(Michalko, 2002:11).

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