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Conference Proceedings - School of Nursing & Midwifery - Trinity ...

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<strong>School</strong> <strong>of</strong> <strong>Nursing</strong> & <strong>Midwifery</strong>, <strong>Trinity</strong> College Dublin: 8 th Annual Interdisciplinary Research <strong>Conference</strong><br />

Transforming Healthcare Through Research, Education & Technology: 7 th – 9 th November 2007<br />

<strong>Conference</strong> <strong>Proceedings</strong><br />

Section 2: Daily Diary Cards<br />

One <strong>of</strong> the secondary objectives <strong>of</strong> this study was to explore the<br />

patients’ experience <strong>of</strong> completing the daily diary cards, as well as<br />

obtaining a greater understanding <strong>of</strong> the patterns <strong>of</strong> nausea and<br />

vomiting they experienced as they progressed through their<br />

chemotherapy treatment. Compliance among the patients<br />

completing the DDCs in this study varied. Although most <strong>of</strong> them<br />

completed all the sections <strong>of</strong> the diary card, only three out <strong>of</strong> the<br />

ten patients that I interviewed actually completed them as they<br />

were instructed. Therefore, it is difficult to ascertain how many <strong>of</strong><br />

the other remaining twenty-one patients completed them as<br />

instructed. It was assumed that the patients would complete them<br />

themselves on a daily basis. However, it is quite likely that in some<br />

cases discussion with their spouse or some other persons may have<br />

influenced the responses given. It is also possible that these other<br />

people may have assisted or indeed in some instances completed<br />

the DDCs. The impact <strong>of</strong> this remains unknown.<br />

Compliance has frequently been found to be a problem in quality <strong>of</strong><br />

life assessments (Baum et al 1979). In a study conducted by<br />

Verschelden et al (1996) on the compliance with, and accuracy <strong>of</strong>,<br />

daily self-assessment <strong>of</strong> peak expiratory flows in asthma patients<br />

over a three month period, they concluded that compliance was<br />

generally poor and that a substantial percentage <strong>of</strong> the values were<br />

invented. This concurs with the findings in this study as the<br />

information recorded on the DDCs <strong>of</strong> the ten patients who were<br />

interviewed did not match with what they described at interview.<br />

Fayers (1995) suggests that to improve compliance, clinicians and<br />

nurses should encourage patients to complete the cards and then<br />

discuss with them what they have recorded. He suggests that<br />

clinicians should use the DDCs as a convenient method <strong>of</strong> capturing<br />

information about how the patient has been feeling since last<br />

attending the hospital. This may improve compliance but it is not<br />

always feasible for a health care pr<strong>of</strong>essional to do so due to time<br />

constraints or lack <strong>of</strong> trained staff in a busy clinic.<br />

de Haes et al (1996) suggest that the compliance <strong>of</strong> patients,<br />

especially when ill, will be enhanced if an instrument is short and<br />

easy to complete. However, as seen in completing this study, the<br />

length and ease <strong>of</strong> the instrument used does not appear to matter,<br />

as all ten patients interviewed said that the DDCs was easy to<br />

complete and well presented, yet most <strong>of</strong> them were completed in a<br />

rather haphazard way.<br />

It is difficult to know which patients in any study or clinical setting<br />

will comply with completing data as requested by the research or<br />

clinical teams and their lack <strong>of</strong> compliance can lead to serious<br />

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