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Conference Proceedings - School of Nursing & Midwifery - Trinity ...

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<strong>School</strong> <strong>of</strong> <strong>Nursing</strong> & <strong>Midwifery</strong>, <strong>Trinity</strong> College Dublin: 8 th Annual Interdisciplinary Research <strong>Conference</strong><br />

Transforming Healthcare Through Research, Education & Technology: 7 th – 9 th November 2007<br />

<strong>Conference</strong> <strong>Proceedings</strong><br />

Occupational biographies were examined using interpretive<br />

phenomenological analysis. Following deep immersion in the data,<br />

recurrent themes were identified and categorised into broader<br />

interpretive groupings, reflecting participant experiences. This<br />

method explores in detail the participant’s perspective <strong>of</strong> the topic.<br />

It is concerned with the individual’s personal, subjective, lived<br />

account <strong>of</strong> the phenomenon, seeking out the uniqueness <strong>of</strong> each<br />

story.<br />

SUMMARY OF KEY FINDINGS<br />

Stories reveal deep personal struggle in adjusting to living with<br />

breast cancer. Lifestyle disruption was found to exert secondary<br />

distress in curtailing expression <strong>of</strong> ‘normal’ self. Many issues were<br />

not raised in the health care setting, resulting in lost opportunities<br />

for health care providers to provide support. Themes include:<br />

NOT DOING = NOT NORMAL<br />

Inability to perform usual activities resulted in a deep sense <strong>of</strong> loss<br />

<strong>of</strong> ‘old self’ and a strong sense <strong>of</strong> present life not being ‘normal’.<br />

The women interpreted themselves as ‘sick’ when unable to perform<br />

habitual activities, particularly ADL tasks.<br />

OCCUPATIONAL RUPTURE<br />

Life-threatening illness imposes an occupational rupture where<br />

functional capacities and the valued familiar activities that are the<br />

essential signature <strong>of</strong> the self are compromised. As indicated by the<br />

use <strong>of</strong> the word ‘rupture’ this is a sudden tearing <strong>of</strong> the fabric <strong>of</strong><br />

normal life where occupational expression is radically and abruptly<br />

changed. All participants described this phenomenon.<br />

FRUSTRATION AT IMPOSITION OF CANCER CALENDAR<br />

Many expressed frustration with the time and energy consuming<br />

practice <strong>of</strong> attending appointments. Some stated that they missed<br />

the comfort <strong>of</strong> previous routines or that these demands impeded<br />

development <strong>of</strong> new lifestyle patterns.<br />

IMPAIRED SENSE OF AGENCY<br />

Many narratives revealed an externalisation <strong>of</strong> locus <strong>of</strong> control<br />

where women felt a reduced sense <strong>of</strong> power and control over how<br />

they chose to express themselves through their ‘doing’ in the<br />

everyday.<br />

NARRATIVE SUSPENSE<br />

All stories contained a ‘narrative suspense’ where the emergent life<br />

story had become stagnated. This disruption left the women feeling<br />

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