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Conference Proceedings - School of Nursing & Midwifery - Trinity ...

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<strong>School</strong> <strong>of</strong> <strong>Nursing</strong> & <strong>Midwifery</strong>, <strong>Trinity</strong> College Dublin: 8 th Annual Interdisciplinary Research <strong>Conference</strong><br />

Transforming Healthcare Through Research, Education & Technology: 7 th – 9 th November 2007<br />

<strong>Conference</strong> <strong>Proceedings</strong><br />

may not be useful in others. Strategies that patients have reported<br />

as helpful centred on a need for others to understand what was<br />

happening to them and the opportunity to partake in gentle exercise<br />

programmes which catered for individual needs with different levels<br />

<strong>of</strong> fitness and different types <strong>of</strong> cancer.<br />

Other symptoms such as alopecia were reported as being very<br />

distressing for patients and although scalp cooling has been proven<br />

beneficial in reducing hair loss with certain chemotherapy regimens,<br />

this was not available in the unit where this study was conducted.<br />

Many patients described how their hair loss made them feel less<br />

feminine and others described how it made them feel like an alien.<br />

Some worried about the effect their hair loss would have on their<br />

families, especially younger children. Others found wearing wigs<br />

very stressful as they thought it attracted more attention to them<br />

and they were concerned about the possibility <strong>of</strong> wigs falling <strong>of</strong>f in<br />

public areas. Some patients suggested that the personnel providing<br />

the wig service both within the NHS and the private sector were not<br />

prepared to cope with their emotional needs and this made them<br />

feel even more vulnerable.<br />

Some health care pr<strong>of</strong>essionals avoid subjects that they are not<br />

comfortable with, despite patients’ wishes to have an opportunity to<br />

explore them. Sexuality and relationship issues were mentioned by<br />

patients as not being addressed appropriately by the health care<br />

team.<br />

Patient information booklets are usually given to all patients so that<br />

they and all health care pr<strong>of</strong>essionals have information about their<br />

treatment. This includes instant access to a record <strong>of</strong> their<br />

treatment plan, investigations carried out, results <strong>of</strong> investigations<br />

and any side-effects they may have experienced from their<br />

treatment. Some patients described how they were confused and<br />

overwhelmed with the amount <strong>of</strong> information they received.<br />

Interviewed patients suggested that their information needs<br />

changed as they progressed through their treatment. Therefore, it is<br />

important that appropriate information is given at various stages<br />

throughout the treatment pathway. This study presents oncology<br />

nurses and nursing as central to ensuring that patients are cared for<br />

and facilitated throughout their disease trajectory.<br />

Recommendations for practice<br />

The management <strong>of</strong> chemotherapy induced nausea and vomiting<br />

remains suboptimal despite the use <strong>of</strong> 5-HT3 antagonists and other<br />

antiemetics, and indigestion is a largely unrecognised side-effect <strong>of</strong><br />

chemotherapy. Increased use <strong>of</strong> drugs to combat indigestion,<br />

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